Ségolène Aymé, Dr.
- Director of the French Institute of Health and Medical Research (INSERM)
- Founder and executive manager of Orphanet (1997-2011)
- Chair - EU Committee of Experts on Rare Diseases (EUCERD)
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The Advisory Board consists of widely recognized experts and stakeholders from academia, industry, entrepreneurship, regulatory specialists, and patient advocacy groups. They will support the Steering Committee with scientific and technical decision-making through specific expertise, feedback, and networks, and offer input on strategic development of the URPP.
